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Inapoi / back

Despre Ana / About Ana

Introduction


Poti dona bani direct in conturile / You can donate directly to these accounts:
RO63BRDE426SV55718364260 – RON / BIC code BRDEROBU
RO59BRDE426SV55718444260 – EURO / BIC code BRDEROBU
BANCA – BRD Groupe Societe Generale SA, titular (account holder) SOARE BOGDAN VIRGILIU




POVESTEA ANEI:
Ana Elena Soare are 2 ani si 7 luni si a fost dignosticata in data de 10.12.2012 cu Leucemie Acuta Limfoblastica. Mos Craciun anul acesta a adus tristetea si disperarea in familia Soare...
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[CLICK TO EXPAND ME] Measjul mamei, Iulia Soare:

The fight against leukemia begins

Luni 10.12.2012, am aflat ca micuta mea raza de soare Ana Elena Soare care nu are decat 2 ani si 7 luni, are “Leucemie Acuta Limfoblastica”.
Trei cuvinte care imi rasuna obsesiv in cap de o saptamana, trei cuvinte atat de dure si nedrepte pentru un sufletel atat de dulce si nevinovat.
Imi vine foarte greu sa ma adun dar trebuie sa lupt!
Trebuie sa o salvam, alta varianta nu pot concepe. Suntem deja la Spitalul Fundeni Sectia II pediatrie . Am terminat tratamentul cu prednison si de maine dupa rezultatul analizelor (vom vedea cat de bine a raspuns la acest medicament si in functie de aceasta ce schema de chimioterapie va urma) incepem prima cura de citostatice.

La finalul acestei cure ( adica aprox 4 saptamani) trebuie sa fiu gata sa plec cu ea in strainatate. Medicii de la Fundeni sunt cei mai buni din Romania dar eu vreau si conditii adecvate pentru tratatrea acestei boli astfel incat sansele ei sa fie 100%.
Asteptam raportul medical tradus pentru a putea solicita acceptul pentru transfer in strainatate in functie de raspuns urmand sa alegem intre: San Matteo -Pavia Italia, Ausburg - Germania si SF ANA Austria.
Din cate am inteles acestea au fost clinicile din Europa cu cele mai bune rezultate pe diagnosticul nostru. Din pacate din cate am inteles clinica AKH din Austria este specializata pe adulti si tineri peste 18 ani.
Avem nevoie de sprijinul fiecaruia pentru a putea aduna suma care ne este necesara pentru tratamentul in strainatate. La o prima estimare aceasta suma este de 80.000 Euro. Durata tratamentului depinde foarte mult de reactia pe care organismul ei o va avea.
Pentru a facilita strangerea de fonduri sotul meu Bogdan a deschis doua conturi (lei si euro) la BRD, in care puteti depune orice suma de care va puteti lipsi, cu titlul de donatie.

Conturile sunt :
RO63BRDE426SV55718364260 – RON
RO59BRDE426SV55718444260 – EURO
BANCA – BRD Sucursala Piata Delfinului, conturi deschise pe numele SOARE BOGDAN VIRGILIU

In cazul in care nu aveti posibilitatea de a dona, am rugamintea de a transmite acest mesaj retelei voastre. Orice suma, indiferent de valoarea ei ne poate ajuta in lupta cu timpul si cu boala.
De asemenea, Ana Elena, are nevoie de transfuzii, grupa de sange necesara este B3 Rh negativ. Din pacate, Institutul Clinic Fundeni a pus la dispozitie doar prima transfuzie, restul fiind realizabile doar cu ajutorul donatorilor.

Puteti dona sange la Institutul de Hematologie Transfuzionala Prof. Dr. C.T. Nicolau : Bucuresti, Sector 1, Str. Constantin Caracas, Nr. 2-8; Telefoane: 021.319.31.62, 021.212.81.26, Fax: 021.319.17.79, E-mail: hemtransro@astral.ro
Orar: Luni-Vineri 7:30-14:00
Donatorii trebuie sa faca mentiunea ca recoltarea sangelui, se face pentru Ana Elena Soare (internata la Spitalul Fundeni, sectia 2 pediatrie, etaj 6, Dr.Anca Colita).

Deocamdata sangele donat zilele trecute ne ajuta foarte mult apreciem orice donatie de sange care se poate face incepand de saptamana viitoare. Pentru persoanele care vor sa doneze din provincie procedura este aceeasi, acestia putand dona la centrul local de transfuzii, ei facand mentiunea specificata mai sus sangele va ajunge la copilul meu.

Mai jos regasiti raportul medical din 13.12.2012 si un fisier cu aceste informatii, daca doriti sa-l distribuiti.

Va multumim anticipat pentru orice forma a ajutorului vostru si sa ne rugam cu totii pentru ANA, eu vreau sa cred in minuni.

Iulia Soare
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Facem un apel catre voi toti pt ca stim ca exista oameni cu suflet bun si suntem absolut convinsi ca vom gasi ajutor in fiecare dintre voi. Unii dintre voi aveti copii, altii va doriti copii, cu totii insa va puteti imagina durerea si disperarea din familia micutei. In cateva saptamani Ana va trebui sa plece la o clinica din strainatate unde, dupa cum probabil ati mai auzit, costurile sunt enorme. Deci, va rugam pe toti cei care aveti posibilitatea, haideti sa o ajutam si sa ii redam dreptul la viata!!!
Fiecare dintre noi poate ajuta in 4 moduri:
- Rugandu-ne pt Ana
- Donand sange in "contul" Anei la Institutul National de Transfuzie Sanguina
*recoltarea se face pentru Ana Elena Soare (internata la Spitalul Fundeni, sectia 2 pediatrie, etaj 6, Dr.Anca Colita)
- Donand bani pentru Ana
- Distribuind povestea Anei

Va multumim din suflet!
Prietenii Anei
18 Decembrie 2012
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ANA'S STORY:
Ana Elena Soare is 2 years and 7 months old and was diagnosed on the 10th of December 2012 with acute lymphoblastic leukemia. This year Santa brought sadness and despair in the Soare family...
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[CLICK TO EXPAND ME] A message from her mother, Iulia Soare:

The fight against leukemia begins

Monday, on the 10th of December 2012, I learned that my little sunshine Ana Elena Soare that is only 2 years and 7 months old, has "acute lymphoblastic leukemia".
Three words that resound obsessively in my head for a week, three words so harsh and unjust for such a sweet and innocent soul.
I find it very difficult to get it together but I have to fight!
We have to save her, I can’t conceive any other option. We already admitted her to Fundeni Hospital Pediatric Department II. We finished the prednisone treatment and tomorrow after the test results (we'll see how good the response to this drug was and depending on that, what type of chemotherapy she will begin) we are starting the first round of cytostatics.

At the end of the cytostatics treatment (ie approx. 4 weeks) we should be ready to go abroad with her. Doctors at Fundeni Hospital are the best in Romania but I want the adequate conditions for treating this disease so her chances would be 100%.
We are waiting for the translated medical report in order to request permission and approval to transfer her abroad, choosing one of the clinics: San Matteo in Pavia Italy, Ausburg in Germany and St ANA in Austria.
From what I understand these were clinics in Europe with the best results in treating our type of diagnosis. Unfortunately from what I understand the AKH clinic in Austria is specialized in adults and young people over 18 years.

We need everyone's help to collect the amount that is required to treat Ana abroad. At a first estimate this amount is 80.000 euros. The duration of treatment depends very much on the reaction that her body will have.
To facilitate fundraising my husband Bogdan opened two accounts (USD and Euro) at BRD Groupe Societe Generale, where you can deposit any amount that you can do without, bearing the title of a donation.

The accounts are:
RO63BRDE426SV55718364260 - RON
RO59BRDE426SV55718444260 - EURO
BIC code: BRDEROBU, BANK - BRD Groupe Societe Generale, account holder Soare Bogdan Virgiliu

If you cannot donate, please send this message to your network. Any amount, no matter how small can help in the fight with time and the disease. Also, Ana Elena needs transfusions, blood type B3, negative RH is required. Unfortunately, the Fundeni Institute has provided only the first transfusion, the rest is achievable only via blood donors (any blood type).

You can donate blood at the Institute of Hematology Transfusion Prof. Dr. CT Nicolau: Bucharest, Sector 1, Str. Constantin Caracas, no. 2-8; Phone: 021.319.31.62, 021.212.81.26 Fax: 021.319.17.79 E-mail: hemtransro@astral.ro
Open hours: Monday-Friday 7:30 to 2:00 p.m.
Donors must mention that the blood collection is made for Ana Elena Soare (admitted in the Fundeni hospital, pediatric section 2, 6th floor, Dr.Anca Colita).

For people who want to donate in cities other than Bucharest, the procedure is the same, they can donate to the local transfusion centre, mentioning that the blood is for Ana Elena Soare, they will make sure that enough blood will reach my child.

Attached you can find the medical report from 13.12.2012 and a file with this information, if you wish to distribute it.

Thank you in advance for any kind of aid you and pray all the ANA, I want to believe in miracles.

Iulia Soare
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We appeal to you all, we know that there are good hearted people and we are absolutely convinced that we will find help in each of you. Some of you have children, others will want children, but you can imagine all the grief and despair the family is going through. Within weeks Ana will have to go to a hospital abroad where, as you probably heard, the costs are enormous. So please everyone who can, let's help her and redeem her right to live!
Everyone can help in four ways:
- Praying for Anna
- Donating blood to Ana’s "account" at the National Institute of Blood Transfusion
* Collection is for Ana Elena Soare (Fundeni hospital, pediatric section no.2, 6th floor, Dr.Anca Colita)
- Donating money for Ana
- Distributing Ana’s story

Thank you very much!

Ana’s friends
18th of December, 2012
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[CLICK TO EXPAND ME] Update - 21.12.2012 - Klinikum Augsburg acceptance

Update - 21.12.2012 - Klinikum Augsburg acceptance
Dragi prieteni,
Ne bucuram sa va spunem ca Ana a fost acceptata la tratament in Augsburg, Germania, spital in care ne punem toate sperantele pentru ca Ana sa isi recapete inapoi copilaria fericita si sanatatea! Pe 7 ianuarie este asteptata la spitalul care, pentru cel putin 6 luni, ii va deveni casa.
Pentru a acoperi costurile tratamentului insa, avem mare nevoie de voi ! Mai sunt foarte putine zile pentru a strange o suma foarte mare, insa avem incredere ca impreuna vom reusi sa o strangem la timp! Va multumim din suflet pentru tot ajutorul vostru!
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Dear friends,
We are very happy to let you know that Ana has been accepted for future treatment in Augsburg, Germany, a clinic in which we can hope will help Ana regain her childhood, happiness and health! On the 7th of January she is expected a the clinic that, for at least 6 months, will become her home.
To cover the costs of the treatment however, we deeply need your help! We have a few days left in order to collect a very large amount, but we are confident that together we will raise it on time! Thank you, from the bottom of our hearts, for all your help!
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Prietenii Anei / Ana's friends
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[CLICK TO EXPAND ME] Update - 22.12.2012 - donations

Update - 22.12.2012 - donations
Fiecare mana de ajutor este binecuvantata...
Inca mai avem o cale lunga, dar asta arata ca fiecare dintre voi CONTEAZA! Asa ca haideti sa ii dam Anei viata inapoi, haideti sa ajutam sa se intample!
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Each helping hand is blessed...
We've still a long way to go, but this just show that each and every one of you DO make a difference! So let's give Ana her life back, let's help make it happen!
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Prietenii Anei / Ana's friends
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[CLICK TO EXPAND ME] Update - 22.12.2012 - how is Ana feeling?

Suntem in Spitalul Fundeni, continuam tratamentul cu citostatice, faza de inductie. Manutele ei sunt pline de vanatai de la nenumaratele locuri in care a tot avut pusa branula. Avand trombocitele foarte scazute, la inceputul tratamentului erau 5000!!! se invinetea foarte repede, si foarte greu se oprea sangerarea. Acum, cu ajutorul donatorilor nostri dragi trombocitele au crescut la 30000. Ana suporta cu stoicism tratamentul cu citostatice care este deosebit de toxic... in ciuda varstei ei intelege tot si este o luptatoare... doar ca zambetul ei minunat nu mai exista... deocamdata. Abia astept sa plecam, stiu ca vom reusi acolo, o multime de copii s-au vindecat... Mamica Anei
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We are at the Fundeni Hospital, continuing the treatment with cytostatics, induction phase. Her little hands are bruised from all the countless places where the cannula was placed. With very low thrombocytes, early in the treatment Ana's count was 5.000! Bruising was very fast and it was very hard to stop the bleeding. Now, with our dear blood donors the thrombocytes increased to 30.000. Ana stoically endures chemotherapy treatment which is highly toxic, despite her age... understanding everything and she is a fighter... just that her lovely smile... is just not there... for now. I can not wait to leave, I know that we will succeed over there, a lot of children were cured... Ana's mom
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[CLICK TO EXPAND ME] Update - 27.12.2012 - how is Ana, and how are the donations going?

Update - 22.12.2012 - how is Ana feeling?
Ana are leucocitele foarte scazute in acest moment, astfel ca a intrerupt trataamentul cu citostatice asteptand sa mai creasca un pic leucocitele. In plus intarzierea tratamentului a fost cauzata si de cresterea foarte mare a glicemiei in urma injectiei cu L-asparaginase...
Desi drumul ce o asteapta este unul lung, sa speram ca va reusi sa-l termine cu succes si dupa tratament sa revina acasa o fetita sanatoasa, inocenta si fericita.
Va multumim tuturor din suflet!!!
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Ana is very low on leukocytes at the moment, so she discontinued treatment with chemotherapy awaiting for the leukocytes to grow a bit. Besides delaying the treatment was caused by high blood glucose increase after injection of L-asparaginase...
Although the road ahead is a long one, let's hope she will be able to finish it successfully and after treatment she will return home a healthy baby girl, innocent and happy.
Thank you all, from the bottom of our hearts!!!
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Prietenii Anei / Ana's friends
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[CLICK TO EXPAND ME] Update - 31.12.2012 - A message from Ana's mother, Iulia.

As vrea sa le multumesc tuturor celor care pana acum ne-au ajutat moral, donand sange si financiar. Ieri Ana a reluat tratamentul cu citostatice toate analizele fiind spre mai bine! Multumim tuturor ingerasilor nostri pazitori! Anul 2013 pentru noi va fi o lupta. In aceasta noapte la trecerea dintre ani o voi tine in brate , ma voi ruga si ii voi da toata energia mea de mama pentru a invinge boala in lunile urmatoare! Va iubim pe toti!
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I would like to thank everyone who helped us morally, financially and by donating blood. Yesterday Ana started the cytostatics treatment again, all her blood work showing better results! Thank you to all our little guardian angels! 2013 will be a battle for us. Tonight, as we bridge two years, I will hold her in my arms, I will pray and I will give her all my motherly energy for her to beat the disease in the coming months! We love you all!
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Mama Anei, Iulia. / Ana's mother, Iulia.
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[CLICK TO EXPAND ME] Update - 31.12.2012 - A message from Ana's friends.

Update - 31.12.2012 - A message from Ana's friends.
December 31st, just another manic Monday from my point of view... nothing special, no cheery-oh, no ho! ho! ho!, not even the pure white snowy landscape, it's all gone. Visually overwhelmed by what matters lately to me, or just plain ignorant to my surroundings, finding it all part of a routine that I don't want to be a part of. Retreating to the office for half of the day seems like a nice refuge to start the day with, finding myself useful for a couple of my colleagues, helping with some numbers, just makes the effort of actually going to work today... worth it.
Knowing that I have an appointment with Ana and Iulia, I grab a quick lunch and swoosh out the door and into traffic again. The purpose of the visit was to solve a couple of IT issues, but of course it was the perfect occasion to see how Ana is doing.
I was able to see her this time, since I made it all the way to the door of the room, without being shaky or teary-eyed. The medical staff seemed great, very helpful and hands-on and calm, given the small patients they are treating... I'm wondering how they're keeping it together... they must have gigantic hearts.

The medical conditions... I guess it could be worse... thank God we're not in a desert tent hospital without proper medication, blood transfusions, L-asparaginase, or thrombocytapheresis (platelet transfusion). The supposedly sterile environment needed for the children undergoing chemotherapy is somewhat far from the desired level, no air sanitizer, the walk-in cleaning involves a large 3M sticky pad that relieves the mothers' slippers from any solid debris, the sterile environment is created by the mothers with wet cleaning tissues, frequent soap abuse at the in-room sink, and the doctors and nurses on call being as careful as they can, with heavy washing, usage of latex gloves, etc. Not the ideal conditions, but it works... so far.

The only comforting thought is that the treatment is going as planned, daily blood work is needed to monitor Ana, and so far so good. I couldn't say she looks better, she's still not happy, having to go through the treatment needed to get her on track... but at least some of the bruising from the cannula is gone, from what I could see from the doorway, she is still only staying in bed... not quite enough energy to be exploring the corridor, but then again, she has an IV drip attached for the better half of the day :(

I was though fortunate to feast my eyes upon a couple of Ana's smiles and giggles as she tickled her mother after lunch, it was the very moment that showed me where all the work and dedication is going to...

The 7th of January will bring new hope for Ana, as she embarks on the long road ahead, I only hope we can all live up to the challenge ahead and not lose our passion and commitment to helping her coming back home with a clean set of blood tests. The 1 or 2 years of treatment after that will hopefully be easier to tackle... but first we have to get to that break even point, where she can come back home healthy and happy.

And as all of you turn the page, celebrating 2013's arrival, we cannot. We refuse to turn any page until Ana is cured and back home safe, we strive to reach our goal, to be all we can, to be at least half as strong as Ana's mother, Iulia. We hope that the new year will bring better news for everyone, but especially for Ana Elena Soare. We pray and hope for better days. And we will do all we can to create... those better days.

Thank you all for all of your help! And don't go too far, we need all of you still, to help us reach our goals.
2013 will be the year for us all, for Ana, for expansion, for we will be relentless.

Please excuse my brevity, reflected by the empty space below where the native tongue version should have been.

Let's help make it happen! Happy new year!

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Ana's friends.
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[CLICK TO EXPAND ME] Update - 05.01.2013 - Preparing to leave to Augsburg

Update - 05.01.2013 - Preparing to leave to Augsburg
Ieri Ana a trebuit sa treaca prin procesul inuman de punctie lombara, pentru a face chimioterapie intratecala... 3 ore culcata, tinuta jos in timp ce punctia a fost facuta. Tratamentul continua, in pregatire pentru plecare de luni catre Augsburg. Bilete de avion catre Munchen, medic insotitor in timpul zborului, transport de la Munchen la Augsburg, totul este pregatit pentru a asigura sosirea in conditii de siguranta a Anei la clinica. In timp ce Ana isi face bagajele si se pregateste pentru calatoria ce o asteapta, sa speram ca ea se va simti mai bine in saptamanile viitoare.
Ea inca are nevoie de ajutorul nostru in saptamanile si lunile viitoare, pentru a raspandi povestea ei si pentru a ajuta la colectarea de donatii, pentru a o ajuta sa se intoarca acasa sanatosa si fericita. E in puterea noastra, asa ca haideti sa ajutam sa se si intample!
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Yesterday Ana had to go through the inhumane process of a lumbar puncture in order to perform the intrathecal chemotherapy... 3 hours lying down, forced down while the puncture was done. The treatment goes on, preparing for Monday's departure to Augsburg. Airplane tickets to Munich, accompanying doctor during the flight, Munich to Augsburg transfer, everything is in place to ensure Ana's safe arrival at the clinic. As Ana packs her bags and prepares for her upcoming trip, let's hope she will feel better in the upcoming weeks.
She still needs our help in the upcoming weeks and months, to spread the word and help collecting donations, to help her come back home healthy and happy. It's in our power, so let's help make it happen!
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Prietenii Anei / Ana's friends
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[CLICK TO EXPAND ME] Update - 08.01.2013 - A message from Ana's mother, Iulia.

Mesajul Iuliei de azi dimineata mai jos, inca asteptam sa o contactam pe Ana si Iulia, sa aflam cum a mers sosirea lor in Augsburg.
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Dragii nostri, ne-ati dat aripi! Chiar credem ca miracolele se pot intampla. Fiecare strop de energie pe care ne-ati dat-o a fost pentru noi apa vie. Azi dimineata am plecat spre Germania, la clinica Augsburg sa ne facem bine!!! Va imbratisam pe toti cu drag! Ana si mami.
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Iulia's message from this morning below, we are waiting to get in touch with Ana and Iulia, to see how their arrival in Augsburg went.
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Our dearest, you have given us wings! We really believe that miracles can happen. Every bit of energy that you gave us was, was like living water for us. This morning we left for Germany, to Augsburg clinic to get better! We embrace you all with love! Ana and mum.
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Prietenii Anei / Ana's friends
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[CLICK TO EXPAND ME] Update - 08.01.2013 - A message after the arrival in Augsburg, Germany

Dragii nostri, a fost o zi lunga pentru noi, Ana a suportat foarte bine zborul cu avionul. Alaturi de noi a fost doctorul Mica de la Ambulanta BGS caruia ii multumim din suflet. Bombonelele daruite de dansul au fost foarte apreciate, iar la un moment dat Ana chiar a adormit linistita. Aici alta lume, alta viata. Ana este acum fericita in patutul ei din clinica Augsburg dupa ce a mancat niste macaroane delicioase cu cubulete de vita... A mancat tot desigur! A fost preluata in sistem german, cu analize , investigatii si MAINE ne monteaza cateter, nemtii fiind induiosati de vanataile de pe mainile copilei mele. Am putere si sunt foarte sigura ca va fi bine! Va pupam cu drag. Ana si Iulia.
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Dear ones, it was a long day for us, Ana handled the flight very well. We had with us dr. Mica from the BGS Ambulance service whom I thank from the bottom of our hearts. The candy offered by him were highly appreciated, and at one point Ana even slept quietly. Here it's another world, another life. Ana is now happy in her crib at the Augsburg clinic, after eating some delicious pasta with beef cubes... She ate it all of course! She was taken over in the german style, with tests, investigations and TOMORROW she will have the catheter mounted, the germans being moved by the bruises on my child's hands. I have power and I am very sure it will be fine! We kiss you all. Ana and Iulia.
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[CLICK TO EXPAND ME] Update - 10.01.2013 - How is Ana doing?

Ieri Ana a trecut cu bine peste operatia cu anestezie generala de montare a cateterului! Inca nu- i vine sa creada ca de acum inainte nu va mai face injectii! Aici dexametazona nu este perfuzabila ci pastilute, iar l-asparaginase nu mai e injectie ca in Romania ci perfuzie! Moralul nostru este la cote inalte , sa ne ajute Dumnezeu sa scapam cu bine din toate aceste incercari!
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Yesterday Ana safely got through the surgery with general anesthesia, for the catheter mount! She still can't believe that from now on she won't have any more injections! Here the dexamethasone is not an IV but a pill, and the l-asparagine is not an injection like in Romania but an IV drip! Our morale is high, God help us to safely get through all these tests!
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Ana si Iulia / Ana and Iulia
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[CLICK TO EXPAND ME] Update - 12.01.2013 - How is Ana doing?

Dragi Prieteni, ziua de marti este ziua 36 a tratamentului si va fi extrem de importanta pentru noi. Vom face punctia medulara in urma careia ni se va comunica daca suntem in remisie totala sau nu. In functie de acest raspuns se va decide mai departe tratamentul. Sa ne rugam cu totii ca Dumnezeu sa ne ajute si Ana sa urmeze calea mai usoara a tratamentului. Este foarte greu pentru corpusorul ei asa mic acest tratament... In ultimele zile a fost extrem de agitata si a mancat non-stop din cauza dexametazonei. Mai avem doar cateva zile de dexa si sper sa- mi recapat dupa aceea copilul... acum e altcineva... nu merge, nu vorbeste, decat tipa sau maraie... Reusesc sa o mai calmez doar cu: cartea junglei si pisicutele aristocrate... Va imbratisam cu drag si va rog sa ne rugam toti pentru ea!!! Iulia, mamica Anei.
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Dear Friends, Tuesday is the 36th day of treatment and it will be extremely important for us. We will do a bone marrow puncture after which we will be told if we are in full remission or not. Depending on the answer future treatment will be decided. Let us all pray that God will help us and Ana will follow the easier treatment path. The treatment is very hard on her small body... The past days she was very hectic and eating non-stop because of the dexamethasone. We only have a few days of dexa left and I hope to regain my baby then... now she is someone else... she does not walk, does not talk, only screams and growls... I manage to calm her down only with: book of the jungle and the aristocratic cats ... We embrace you and please let's all pray for her!!! Iulia, Ana's mom.
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[CLICK TO EXPAND ME] Update - 15.01.2013 - How did the puncture go?

Ana a iesit cu bine din sala de operatie! A fost adormita pentru punctia medulara, acum a deschis ochisorii! Nu am avut emotii acum cred ca toate rugaciunile au ajutat! Toate rezultatele speram sa fie gata pana maine ! Va pupam pe toti si Doamne ajuta! Sa tinem pumnii stransi sa ne rugam sa fie bine!!!
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Ana came out well of the operating room! She was asleep for the bone marrow puncture, her little eyes are now open! I wasn't nervous, now I believe that all the prayers helped! We hope that all the results will be ready by tomorrow! We kiss you all and God help! Let us keep our fingers crossed and pray that it will be good!
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Iulia, mamica Anei / Iulia, Ana's mum
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[CLICK TO EXPAND ME] Update - 16.01.2013 - Ana's test results

Rezultatele de azi: In acest moment avem 2% blasti in maduva ceea ce este un procent bun, trebuia sa fie sub 5%. Sper ca Dumnezeu sa ne ajute si dupa urmatoare etapa care o incepem probabil maine (in functie de analizele de sange) nu vom mai avea deloc. Era minunat daca erau de acum 0% dar sa vedem partea plina a paharului. Eu o vad si cred din tot sufletul ca vom fi bine. Va pupam!
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Today's results: We currently have 2% blasts in the bone marrow, which is a good percentage, it had to be under 5%. I hope God will help us and after the next step that will probably start tomorrow (depending on the blood tests) we will not have any at all. It would have been great if it was 0% but now I see the glass half full. I see it and believe in my heart that we will be fine. We kiss you!
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Ana si Iulia / Ana and Iulia
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[CLICK TO EXPAND ME] Update - 18.01.2013 - A message from Ana's mom

Un mesaj de la mama Anei / A message from Ana's mom
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Noi inca nu am inceput protocolul 1B, asteptam analizele de azi, ieri leucocitele erau inca scazute. Ana nu mai ia dexametazona dar inca obiceiurile de a manca foarte mult si a dormi extrem de putin nu au disparut. Probabil ne mai trebuie cateva zile sa iasa complet din sange substanta luata atata timp... Pupici.

Si i se ia pielea de pe palme... maini... si se uita si plange zice mami uite la mine.... si ii zic ana nu e nimic, ne facem pielea frumoasa, uite spalam, si dam cu crema, si apoi se bucura. Apoi dupa ceva vreme o luam de la capat ca iar se usuca, se descuameaza, cred ca la fel e la laba piciorului dar nu ma lasa sa ma apropii de picioare... asta se intampla de la chimio...
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We still have not started the 1B protocol, we are expecting the tests today, yesterday the leukocytes were still low. Ana doesn't take dexamethasone anymore, but still a lot of eating habits and very little sleep haven't disappeared. Perhaps we need a few days to completely flush the substance taken for so long from the blood... Kisses.

And her skin is coming off of her palms... hands... and she is looking and crying, saying look at me mommy... and I tell her it's nothing, we are making our skin more beautiful, look we're washing it, puting cream on, and then she is glad. Then after a while we go at it again, her skin is dry again, blistered, I think it's the same with her feet, but she won't let me come close to her feet... this is what happens from chemo...
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[CLICK TO EXPAND ME] Update - 19.01.2013 - A message from Ana's mom

Update - 19.01.2013 - A message from Ana's mom
Mesajul Iuliei de sambata, 19 Ianuarie 2013.

Buna dimineaa! Din pacate si ieri si azi Ana a avut febra, maxima ajungand ieri la 38.3. Acest lucru ne-a impiedcat sa incepem faza a 2a de tratament. Masinaria germana s-a declansat ieri si in mai putin de o ora Ana avea vizita doctorului, radiografie facuta, analize extinse recoltate, perfuzii cu hidratare si antibiotic in perfuzie. Modul lor rapid de operare ma face sa fiu linistita si sa sper ca pana luni Ana va fi ok si vom incepe tratamentul. Ea este intr-o stare de spirit buna de ieri de la pranz, mi-a daruit cateva zambete sagalnice marca "Ana" si a inceput sa vorbeasca cu mine! Ce pot sa imi doresc mai mult... sa aud acele comentarii dulci pe care nu le-am mai auzit de 6 saptamani... Si totul a inceput de la vizita celor 2 clovni pe are am primit-o la noi in salon...

Ana a fost fascinata de giumbuslucurile lor si a ras cu adevarat pentru prima data de la inceperea tratamentului. Atunci m-am hotarat... m-am inarmat cu un nas rosu pe care clovnii mi l-au dat si intretin atmosfera in locul lor. Este grozav sa o vad ca rade... nu credeam ca se va mai intampla prea curand.

Am avut zilele trecute niste episoade groaznice: cu manutele care se descuamau, si ea zicea :uite mami... si eu la randul meu incercam sa o linsitesc... spalam manutele le dadeam cu crema se linistea din plans cand vedea ca e ok, apoi in cateva ore o luam de la capat... Se mangaia pe cap si zicea... Ana nu are par... iar eu ii aminteam ca ne-am tuns ca ne era foooarte cald si reuseam cat de cat sa o linistesc... apoi o dureau piciorusele groaznic, de nu poate sta pe ele.... si in final febra... deci au fost niste zile teribile. Azi parca vad luminita... Va pupam cu drag pe toti si sa ne rugam sa fie ingerasul bine!

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Iulia's message from yesterday, 19th of January 2013

Good morning! Yesterday and today unfortunately Ana had a fever, reaching a maximum of 38.3 yesterday. This prevented us from beginning the second phase of the treatment. The german machine was started yesterday and in less than an hour Ana had a visit from the doctor, x-ray done, collected extensive analysis, hydration and antibiotic IV in place. Their fast intervention made me comfortable, and I hope that by Monday Ana will be ok and we will start the treatment. She is in a good mood since yesterday afternoon, she gave me some playful smiles "Ana" trade mark, and began to talk with me! What could I want more ... to hear those sweet comments I have not heard for 6 weeks... And it all started with the visit of two clowns we have received in our room...

Ana was fascinated by their tricks and really laughed for the first time since starting the treatment. Then I decided... I armed myself with a red nose that the clowns gave me and I maintain the atmosphere in their absence. It's great to see that laugh... I did not think that it will happen anytime soon.

The past few days we had some terrible episodes: with her hands flaky, and she said, look mom... I tried to calm her down... washed her hands with cream, this stopped her from crying when she saw it's ok, then in a few hours we go at it again... She patted on her head and said ... Ana doesn't have any hair... and I reminded her that we cut it because we were very hot and I managed to calm her a bit... then her feet hurt terribly, she couldn't even sit up... and finally the fever... so there were some terrible days. Today I think I see the light... We kiss you all, and let us pray that the little angel will be ok!
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[CLICK TO EXPAND ME] Update - 23.01.2013 - Ana gives us a simle

Update - 23.01.2013 - Ana gives us a simle
Buna dragilor!
Primele zambete ale Anei... Am scapat de temperatura, noroc ca nu a depasit 38,5 C iar cu timpul a scazut ieri si azi am avut 36,7 , analizele de sange au iesit toate bune deci azi incepem a doua etapa a tratamentului!! Doamne ajuta si va pupam pe toti! Cu drag, Ana si mami.

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Hi dears!
The first smiles from Ana... The temperature dropped, we were lucky it didn't go above 38.5 C and in time it decreased, yesterday and today she had 36.7, blood tests came out all good so today we begin the second phase of treatment! God bless and we kiss you all! Love, Ana and mommy.
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[CLICK TO EXPAND ME] Update - 26.01.2013 - Second lumbar puncture

Update - 26.01.2013 - Second lumbar puncture
Ieri Ana a facut a doua cura de chimio si punctie lombara. Pare ca suporta foarte bine, iar aseara a avut loc o schimbare pentru ea pentru ca ne-am mutat in Casa Parintilor. Sa vedem cum va reactiona, speram sa ii priasca. Revenim in spital doar pentru tratament. Nu stiu sigur daca o sa rezolv peste week-end cu internetul in casa dar cu siguranta saptamana viitoare mai auziti vesti de la noi. Pupici multi!
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Yesterday Ana made the second course of chemotherapy and lumbar puncture. She seems to handle very well, and last night there was a change for her because we moved into the family house. Let's see how she will react, we hope to bring improvement. We will return to the hospital for treatment only. I'm not sure if I will fix the internet over the weekend but you will definitely hear from us next week. Lots of kisses!
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[CLICK TO EXPAND ME] Update - 03.02.2013 - A message from Iulia

Mesajul Iuliei din 03.02.2013: Aseara la 22 ne-am intors la spital, Ana a avut brusc 38.1 febra... pana am ajuns la spital (aprox 20 min) ajunsese deja la 38,8. Alta reactie "minunata" la chimio... Cu toate acestea s-a decis continuarea chimio, e foarte periculos sa opresti cura pentru ca ar putea sa nu mai aiba efectul scontat. Dupa chimio de azi a facut iar 39 grade C. Noroc ca analizele nu indica vreo infectie in sange. Acum suntem la 37.8 si maine ar fi iar chimio si apoi pauza 3 zile... Sa ne ajute Dumnezeu sa putem face si maine tratamentul. Cu toate acestea Ana imi da o lectie despre ce inseamna curajul si cat de puternica este printesa mea. La 39 temperatura ea se ridica pe picioruse in patut si imi zice: mami sa nu fi trista hai sa cantam si sa dansam... Si am cantat melodia din pisicutele aristocrate: cat de bine, cat de bine, cat de bine e sa fi motan.... apoi vede la TV imagini cu cina cea de taina si imi spune.. Fara ca eu sa scot vreo vorba: mami, inchina- te sa se faca Ana bine... Mi-e foarte greu sa- mi tin firea dar trebuie. Va imbratisam si va pupam pe toti!!!
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Iulia’s message from 03.02.2013: Last night at 10PM we went back to the hospital, Anna suddenly had fever 38.1... until we got to the hospital (about 20 min) it had already reached 38.8. Another "wonderful" reaction to chemo... However, it was decided to continue the chemo, it's very dangerous to stop the cure for it could have no effect. After today’s chemo she had 39 degrees C again. Luckily the tests do not indicate an infection in the blood. Now we are at 37.8 and chemo tomorrow, then a break for three days... God help us that we can do tomorrow’s treatment. However Ana gives me a lesson in what courage means and how strong my princess is. Her temperature rises to 39 and she gets on her feet in the crib and she says do not be sad mommy let's sing and dance... And I sang the song of the aristocratic cats: how good, how good, how good it is to be cat.... then she sees on TV the images of the Last Supper and tells me... Without me saying anything: Mom, pray so that Ana will get better... It's very hard to keep it all together but I have to. We hug and kiss you all!
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[CLICK TO EXPAND ME] Update - 05.02.2013 - A message from Iulia

Mesajul Iuliei din 05.02.2013 Aseara a ajuns la 40,2 temperatura. Este un mister corpul e ok, analizele toate bune.... Ea rade si glumeste cu toate acestea in seara aceasta a trebuit sa intrerupa chimio. I s-a schimbat antibioticul administrat si profesorul a decis ca in aceasta seara nu mai ia pastilele de puri nethol. Speram ca pana vineri cand trebuie sa faca punctie lombara cu Mtx si citostaticul sa nu mai aiba febra. Ma rog la Dumnezeu sa ne ajute sa trecem si de momentul acesta... Vineri trebuie neaparat sa facem tratamentul, nu e bine sa fie intrerupt. Cu toate acestea Ana gaseste putere sa fie dulce cu " mami ei care o iubeste muuult" iar eu in continuare incerc sa fiu la inaltimea curajului ei.... Cum spune ea mai nou: " mami nu-ti fie teama,Ana se descurca....." Pupici tuturor!
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Iulia’s message from 05.02.2013 Last night the temperature reached 40.2. It is a mystery the body is ok, tests all good .... She laughs and jokes tonight but she had to discontinue chemotherapy. She had the antibiotic administered changed and the teacher decided tonight she will not to take the puri nethol pills. We hope that by Friday when she has to do the lumbar puncture with MTX and cytostatic, she will no longer have a fever. I pray to God to help us move past this ... Friday we really need to do the treatment, it's not good to be discontinued. However Ana finds the strength to be sweet with "her mom that loves her a lot" and I still try to be at the height of her courage .... As she says lately: "Mommy do not be afraid, Ana is doing ok....." Kisses to all
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[CLICK TO EXPAND ME] Update - 12.02.2013 - A message from Iulia

Ana a facut ieri punctia lombara si tratamentul cu citostatice, de dimineata hemoglobina ei era 12,8 . Totul a decurs foarte bine dupa tratament. Ana a mancat o portie mare de peste... si ciocolata :). Ea este iubita de catre toti doctorii si asistentele, i-a dat pe spate cu germana ei. Cel putin ieri, fiecare persoana care intra la noi in salon primea un zambet, un pupic trimis cu palmuta si nelipsitele multumesc si la revedere in germana :). Sa dea Dumnezeu sa fie bine pana la capat! Ea intelege tot ce se intampla si stie ca toata lumea din spital vrea sa o ajute! Va imbratisam cu drag... P.S.: sms-urile indescifrabile sunt opera ei. Se joaca cu telefonul meu foarte mult :) , se uita la poze si filmulete de acasa si inevitabil mai da cate un mesaj sau telefon aiurea :)
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Iulia
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Ana did a lumbar puncture yesterday and chemotherapy treatment, her hemoglobin was 12.8 yesterday morning. Everything went very well after the treatment. Ana ate a large serving of fish... and chocolate :). She is loved by all the doctors and nurses, she blew them away with her German. At least yesterday, every person entering the room received a smile, a hand blown kiss and the usual “thank you” and “goodbye” in German :). May God help so it will be good all the way! She understands what is happening and knows that everyone in the hospital wants to help her! We embrace you all with love ... P.S.: the undecipherable messages are her work. She is playing with my phone a lot :), looking at pictures and videos from home and inevitably sends a message or makes a call randomly :)
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Iulia
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[CLICK TO EXPAND ME] Update - 16.02.2013 - A message from Iulia

Ana este vesela, suntem in pauza de tratament pana duminica cand il reluam. Duminica, luni, marti, miercuri tratament apoi o zi pauza si apoi ultima doza de cyclofosfamid si incheiem protocolul IB. Apoi avem 2 saptamani pauza dupa care facem punctia medulara si ne spune care este situatia ei. Dupa care urmeaza sa incepem protocolul M care dureaza aproximativ 8 saptamani daca totul decurge ok, fara intreruperi. Sa ne ajute Dumnezeu sa fie bun rezultatul punctiei. Va rog sa ne rugam pentru acest lucru. Va imbratisam cu drag si multi pupici optimisti din Augsburg!
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Iulia
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Ana is happy, we are on a treatment break until Sunday when we will resume. Sunday, Monday, Tuesday, Wednesday and then one day break and then the last dose of cyclofosfamid and we will cocnclude the IB protocol. Then we have 2 weeks off then we will do the marrow puncture which will tell us what her situation is. Then we will start the M protocol which takes about 8 weeks if everything goes ok without interruption. God help us to have good puncture results. Please let us pray for this. We embrace you with love and many optimistic kisses from Augsburg!
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Iulia
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[CLICK TO EXPAND ME] Update - 25.02.2013 - A message from Iulia

Ana a facut vineri ultima sedinta de citostatice din blocul IB. A fost monitorizata in spital pana sambata la pranz. Dupa aceea, daca da Dumnezeu si este ok fara reactii adverse are 2 saptamani de pauza in care face doar analize de sange. Dupa aceasta pauza, incepe blocul M care dureaza 8 saptamani. Inainte de a incepe acest bloc nou Ana va face punctia medulara care ne va arata daca mai are blasti in maduva... Sa speram si sa ne rugam sa nu mai fie!

Astazi noi am inceput prima saptamana de pauza. Ana a mers la spital pentru analize si pentru ca au fost foarte scazute trombocitele (la un moment dat aveam 200 mii acum avem 23 mii) si hemoglobina este 7,8 maine ne ducem la spital pentru transfuzii de sange si trombocite. Am inceput sa plang cand mi-a zis cu gurita ei scumpa: mami, de ce esti suparata, pentru ca au scazut trombocitele? Inteleg ca e normal dupa tratamentul atat de dur si ca ea asteapta sa fie mai bine adica sa se fi curatat tot si sa inceapa maduva sa lucreze...

Vedem pe 8 martie cand facem punctia medulara. Sa ne ajute Dumnezeu sa fie ok! Va imbratisam cu drag! Pupici multi tuturor!
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Iulia
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Ana did on Friday the last IB block chemotherapy session. She was monitored in the hospital until Saturday at noon. After that, if God helps us to be ok with no side effects, she has 2 weeks break in which only blood tests will be done. After this break, she will start block M which lasts 8 weeks. Before starting this new treatment block Ana will do a bone marrow puncture which will show if there are blasts present... Let's hope and pray not to be!

Today we started the first week of break. Ana went to the hospital for tests and because platelets were very low (at one point 200.000 she now has 23000) and hemoglobin is 7.8, tomorrow we go to the hospital for blood transfusions and platelets. I started to cry when she told me with her dear mouth: mommy, why are you upset because the platelets are low? I understand that's normal after such a hard treatment and that she expects to be better everything to be cleaner and for the bone marrow to start working...

We will see on the 8th of March when we will do the marrow puncture. God help us to be ok! We hug you dearly! Many kisses to all!

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Iulia
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[CLICK TO EXPAND ME] Update - 07.03.2013 - A message from Iulia

Update - 07.03.2013 - A message from Iulia
Ieri analizele Anei au fost foarte bune. Asteptam punctia de vineri... Ana este vesela, se joaca, alearga... cand o vad asa ma simt si eu mai bine. Va pupam si va imbratisam!
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Iulia
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Yesterday Ana's tests came out very good. We are waiting for the puncture on Friday... Ana is happy, playing, running... when I see it and I feel better. We kiss and hug you!
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Iulia
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[CLICK TO EXPAND ME] Update - 09.03.2013 - Ana's update after the puncture

Update - 09.03.2013 - Ana's update after the puncture
Buna, ieri Ana a facut punctia, de dimineata la ora 8. Apoi a fost foarte ok a mancat , a baut foarte bine. Asteptam rezultatele saptamana viitoare. Astazi trombocitele si hemoglobina au fost foarte bune dar leucocitele prea mici si nu am putut incepe chimioterapia. Asteptam sa facem analize luni, sa speram ca isi revin pana atunci si putem incepe . Nu sunt motive de ingrijorare doctorii spun ca nu e nicio problema sa incepem saptamana viitoare. Sa vedem rezultatele punctiei, speram sa ne ajute Dumnezeu. Dupa ce am ajuns acasa, in jurul orei 14, am mancat si am adormit amandoua pana la 8 seara... Va imbratisam cu drag Ana si mami
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Hi, yesterday Ana did the puncture in the morning at 8 o'clock. Then she was very ok she ate, drank very well. We are expecting the results next week. Today the platelets and hemoglobin were very good but te leukocytes were too small and we could not start chemotherapy. We will do the tests on Monday, let’s hope she will recover by then and we can begin. No reasons to worry, the doctors say that there is no problem to start next week. Let’s see the puncture results, we hope God will help us. After we got home, around 14, we ate and we both slept until eight in the evening... We warmly embrace you, Ana and mommy
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[CLICK TO EXPAND ME] Update - 21.03.2013 - Ana's update after the puncture

Update - 21.03.2013 - Ana's update after the puncture
Buna, dupa ce asteptarea rezultatelor punctiei s-a prelungit pana astazi, asteptand sa creasca anumiti parametrii pentru a incepe chimio din nou, am primit astazi rezultatul punctiei. Asteptarea ne-a omorat, in unele zile ne-am plimbat cateva ore afara... sa ne mai linistim. E foarte greu, e o lupta incredibila de cele mai multe ori sunt puternica insa am si momente de slabiciune cand mi se face frica...
Trecand peste frica si asteptare, in sfarsit a venit doctorita astazi si ne-a dat rezultatul punctiei... in acest moment Ana nu are celule canceroare in maduva, tratamenul se pare ca a produs rezultatul mult asteptat, si putem macar spune ca nu mai intra in discutie transplantul de maduva in acest moment. Tratamenul continua, conform protocolului stabilit, si speram din tot sufletul ca si urmatoarele rezultate sa fie la fel de bune.
Rezultatul punctiei si analizele de sange au permis inceperea protocolului M, si de astazi incepem cu Mtx (Methotrexate) intravenos. Sa speram ca totul va fi bine de aici incolo. Medicii erau optimisti, vom vedea. Sa dea Dumnezeu ca totul sa decurga bine in continuare. Va pupam!
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Hello, after the wait for the puncture results was prolonged until today, waiting for certain parameters to grow, to begin chemo again, I received today the puncture result. The expectation killed us, in some days we walked a few hours outside... to calm down. It's very hard, it's an incredible fight, most of the times I am strong but I have moments of weakness when I am scared...
Passing over fear and waiting, finally the doctor came today and gave us the puncture result... at this moment Ana has no cancer cells in the bone marrow, the treatment seems to have produced the long awaited result, and we can at least say that a bone marrow transplantation is out of the discussion for the moment. Treatment continues, according to the established protocol, and we hope with all our heat that the following results will be just as of good.
The puncture result and blood tests have allowed the start of Protocol M, and as of today we start with MTX (Methotrexate) intravenously. Let's hope that everything will be fine from here on. Doctors were optimistic, we'll see. God help us for everything to go smoothly. Kisses!
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[CLICK TO EXPAND ME] Update - 01.04.2013 - Ana's update

Update - 01.04.2013 - Ana's update
Dragii nostri,
Aici vine cu greu primavara dupa zapada care a cazut in ultima saptamana... de altfel ca si acasa... In week-end s-a sarbatorit Pastele si nemtii s-au pregatit foarte frumos de sarbatoare, am fost si eu la biserica, la Domul din centru orasului si am fost impresionata de cat de simplu si curat traiesc acest moment. Mi-am incarcat acolo bateriile pentru ultimele doua runde de tratament...
Ana este bine, continuam tratamentul cu optimism si asteptam sa ne intorcem acasa cu bine. Marti ne internam din nou pentru patru zile pentru citostaticele perfuzabile. Sper din tot sufletul ca va trece cu bine peste tratament, este a doua cura de acest gen si nu ar trebui sa apara complicatii avand in vedere ca peste prima a trecut foarte bine.
Si asa se va derula acest bloc care are in total 4 astfel de cure pe durata a 8 saptamani. Dupa care vom incepe ultimul bloc, care dureaza sapte saptamani si pentru care vom sta mai mult in spital deoarece este tratamentul final de sigilare cum il numesc ei in care va lua din nou toate citostaticele de pana acum si unul nou in plus...
Sper ca sunteti bine si astept cu nerabdare sa ne revedem. Va imbratiam cu mult drag.
Multi pupici.
Ana si Iulia
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Dear ones,
Here the spring comes slowly, after heavy snow fall last week... just like back home... In the weekend the Germans celebrated Easter and they were very nicely prepared for the holidays, I've also been to church, the Cathedral in the city center, and I was impressed by how simple and clean they are living this moment. I recharged my batteries there, for the last two rounds of treatment...
Ana is fine, she is continuing the treatment with optimism and looking forward to return home safely. On Tuesday she will be hospitalized again for four days to do cytostatics infusion. I sincerely hope that she will get through treatment, this is the second one of its kind and no complications should appear since she got over the first one very well.
And so this block will run for a total of 4 such courses during the following 8 weeks. Then we begin the last block, which lasts seven weeks and we will stay longer in the hospital because it is the final sealing treatment as they call it when she will take all the cytostatics up till now and another new one...
I hope you are well and look forward to seeing you! We embrace you with love.
Many kisses.
Ana and Iulia
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[CLICK TO EXPAND ME] Update - 17.04.2013 - Ana had visitors!

Update - 17.04.2013 - Ana had visitors!
Saptamana trecuta, in vacanta scolara, Andreea si tati ne-au vizitat in Augsburg. Nu pot descrie in cuvinte bucuria ei si a noastra, a tuturor. Dupa atata timp am fost din nou toti patru impreuna. Ana continua tratamentul citostatic cu purinethol si a incheiat cu bine a doua cura de MTX. Astazi ne-am intors la spital pentru a treia cura de MTX, cu pasi mici ne apropiem de finalul tratamentului, sa speram ca totul va fi bine si Ana se va intoarce acasa sanatoasa! Pupici multi!!!
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Last week during the school holiday, Andreea and daddy visited us in Augsburg. I can not describe in words her joy, our joy, all of us were extremely happy. After all this time we were all four together again. Ana continues chemotherapy treatment with Purinethol and finished successfully the second course of MTX. Today we went to the hospital for the third course of MTX, with small steps we are approaching the end of the treatment, hopefully everything will be fine and she will return home healthy! Many kisses!!!
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[CLICK TO EXPAND ME] Update - 24.04.2013 - Ana's update

Sambata am terminat etapa 3 se citostatice din protocolul M. 2 saptamani pauza apoi incepem ultimul tratament din protocolul M. A fost greu, ea a suportat bine dar a fost mai nervoasa ca in alte dati... La 2 saptamani dupa ce terminam protocolul M vom face din nou punctie medulara sa vedem cum stam si apoi incepem ultimul protocol!! Cu Dumnezeu inainte! Multi pupici!
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Saturday we finished stage 3 of chemotherapy from the M. Protocol. 2 weeks break and then we start the last treatment phase from protocol M. It was hard, Ana tolerated it well but she was more nervous than other times... At 2 weeks after finishing the protocol she'll do another marrow puncture to see how we stand, and then we will start he last protocol! May God help us! Many kisses!
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[CLICK TO EXPAND ME] Update - 07.05.2013 - Ana's Easter update!

Hristos a inviat! Numai bine tuturor, si fie ca Invierea Domnului sa aduca miracolul pe care atat de mult mi-l doresc. Miercurea trecuta am inceput protocolul M. De Paste noi am fost ca si de Craciun de altfel, in spital... sa dea Dumnezeu sa fie bine, am facut ultima cura de MTX din protocolul M. Noi mai avem 2 zile de tratament si incheiem protocolul M. Saptamana viitoare facem punctia medulara sa vedem cum stam. Apoi cu ajutorul lui Dumnezeu vom incepe ultimul protocol. Este extrem de greu mai ales ca aici unde stam sunt copii care sufera enorm. Uneori plang numai cand vad aceasta suferinta nedreapta si a celorlalti copii. Va imbratisam cu drag!
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Christ is Risen! All the best to everyone, and may the Resurrection bring to me the miracle I so much want. Last Wednesday we started the M protocol. For Easter we were, just like Christmas, in the hospital... May God be good, we just did the last course of MTX of protocol M. We have 2 days left of treatment from the M protocol. Next week we will do another marrow puncture to see how we stand. Then with God's help we will begin the last protocol. It is extremely difficult especially as we stand here where children are suffering enormously. Sometimes I cry when I see the unjust suffering that other children have to go through. We embrace you with love!
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[CLICK TO EXPAND ME] Update - 15.05.2013 - Ana's 3rd Birthday!

Update - 15.05.2013 - Ana's 3rd Birthday!
Ana a implimint 3 ani!!! Anei ii este dor de casa... I-am facut tort, am incercat sa fac o mica petrecere sa se simta bine. Important este ca suntem ok si abia asteptam sa venim acasa cu bine. Pupici!
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Ana is 3 years old!!! Ana is homesick... I made the cake, I tried to do a little party so she would feel good. The important thing is that we are ok and can not wait to come home safely. Kisses!
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[CLICK TO EXPAND ME] Update - 01.06.2013 - Ana's update!

Buna! Pupici de la noi. De cateva zile am inceput ultimul protocol. E teroare, dexametazona o innebuneste efectiv, nu mai stie de ea. I se schimba toanele la minut, urla din orice. Doamne tine-ma tare inca 7 saptamani... Weekend-ul trecut a fost groaznic. Cum rezolvam ceva, incepea sa planga pentru altceva. Deocamdata cu mancatul vad ca se comporta ok, nu exagereaza. Va fi foarte greu pe ultima suta de metri exact cum si anticipasem. Saptamana asta am fost iar la spital, am facut si vincristina, alt citostatic minunat de la care data trecuta nu se putea tine pe pucioare. Eu nu stiu cum un copilas asa mic poate suporta atata suferinta. Imi vine sa... e foarte greu... si parca nu o mai pot vedea asa... Mi se rupe sufletul...ma striga mereu. Si imi zice: mami, la spital niciodata nu ma lasa singura si ma mangaie mereu… O iubesc mult pe mami. Apoi se duce singura, ia cutiuta cu apa sfintita si ulei sfintit de la Sf Nectarie si se da singura si pupa poza Sfantului. Apoi zice: gataaa, ca sa se faca Ana bine sa plece acasa la tati si Deea...
Daca am scapat de ziua de miercuri probabil putem scapa de orice!!! A avut 3 citostatice (vincristina, daunorubicina si pegasparaginase) in 8 ore... si cortizon pe deasupra. Joi a fost cam varza saracuta iar eu de ieri am o durere de cap care nu trece cu nimic...
Inca putin si vom fi inapoi acasa… Iulia
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Hello! Hugs from us. The last few days we started the last protocol. It’s horrible, dexamethasone drives her crazy, she’s completely changed. Her moods change from minute to minute, she screams out of anything. God keep me strong for another 7 weeks... Last weekend was terrible. The minute we solved something, she started crying for something else. For now I see that she is ok with eating, she is not exaggerating. It will be very hard on the final stretch just as anticipated. This week while we were in the hospital, she took vincristine, another cytostatic that last time knocked her off her feet. I do not know how a baby so small can withstand such suffering. I feel like ... it's very hard ... and I can’t stand seeing her like this anymore ... It breaks my heart ... I always cry. And she sais: Mom, the hospital never leave me alone and always comfort me ... I love you so much mommy. Then she goes alone, she packs holy water and holy oil of St Nectarie and she oils herself and kisses the Saint’s picture. Then she sais all done, to make Ana better so she can go home to daddy and Deea ...
If we got over Wednesday we probably can get away with anything! She had three chemotherapy (vincristine, daunorubicin and pegasparaginase) in 8 ours ... and cortisone on top. Thursday was a little sick the poor thing, and I have a headache since yesterday that does not go away with anything ...
A little more while and we’ll be back home…
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[CLICK TO EXPAND ME] Update - 18.06.2013 - Ana's update!

Update - 18.06.2013 - Ana's update!
Pupici! Ne pregatim miercuri pentru ultima serie de vincristina, doxorubicina si dexametazona... Apoi mai avem 3 saptamani de tratament cu un citostatic nou, pe care nu l-a mai facut pana acum plus MTX si mercaptopurin... Dar speram ca pana miercuri sa ne creasca leucocitele... din cauza tratamentului din aceasta saptamana leucocitele sunt doar 1,6 iar hemoglobina si trombocitele din fericire sunt foarte bine! Daca leucocitele nu sunt peste 2 nu putem face chemo... Intre timp ea mananca non stop de la cortizon, doarme foarte prost, agitata... Si nu ma ajuta deloc sa crestem leucocitele... Nu vrea sa mearga... Zice ca o dor piciorusele... Ca sa ne creasca leucocitele trebuie sa ne miscam.... Ea doar sta in fundulet si mananca... Si plange... Mi se rupe inima. Imi tot zic ca mai avem doar cateva saptamani ca sa pot rezista... Se agata de mine ca un pui mic ce sta lipit de closca... Nu am voie sa plec decat la bucatarie sa ii aduc mancarea... Ajuta-ne Doamne sa terminam cu bine totul!!!
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Hugs! We are preparing Wednesday for the last series of vincristine, doxorubicin and dexamethasone ... Then we have 3 weeks of treatment with chemotherapy again, with a new drug she has not done before and mercaptopurine plus MTX ... But we hope that by Wednesday her leukocytes will grow... from the treatment this week the leukocytes are only 1.6 but thankfully hemoglobin and platelets are very good! If she hasn’t leukocytes over 2 she can not do chemo... Meanwhile she eats nonstop from the cortisol, sleeping poorly, hectic... And it doesn’t help at all to increase leukocytes... She doesn’t want to walk, she sais her legs hurt… For the leukocytes to grow she has to move.... She just sits on her bum and eats... And cries... It breaks my heart. I keep saying to myself that we still have a few weeks so I can resist... She clings to me like a small chicken glued to the hen... I'm not allowed to go only to the kitchen to bring food... God help us to end it all well!!!
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[CLICK TO EXPAND ME] Update - 01.07.2013 - Ana's update!

Update - 01.07.2013 - Ana's update!
Buna dragilor! Multa lume m-a intrebat desprea Ana zilele acestea. Din pacate nu am inceput inca ultimele 2 saptamani de tratament pt ca avem inca leucocite foarte scazute dupa chimioterapia de saptamana trecuta. Acum asteptam sa vedem ce analize avem luni si poate ne ajuta Dumnezeu sa terminam o data. Dupa ce terminam tratamentul urmeaza o perioada de asteptare de 4-6 saptamani in care face doar analize si diverse teste pentru a se decide data scoaterii cateterului. Dupa operatia de scoatere a cateterului urmeaza inca 1-2 sapt de monitorizare.... Asa ca data revederii este mult mai indepartata decat credeam. Cel mai important este ca Ana sa fie bine. Pupici multi!
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Hello dears! Many people asked me about Ana these days. Unfortunately we have not yet begun treatment for the last 2 weeks we have still very low white blood cell count after chemotherapy last week. Now we wait to see what tests we have today and may God help us to finish this. After finishing treatment we will have a waiting period of 4-6 weeks which is just analysis and various tests to decide on catheter removal. After surgery to remove the catheter monitoring will still be another 1-2 weeks .... So the moment we will see you again will be later than we thought. The most important thing is that Ana will be fine. Many kisses!
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[CLICK TO EXPAND ME] Update - 25.07.2013 - Ana's update!

Update - 25.07.2013 - Ana's update!
Ana a terminat chimioterapia miercurea trecuta... Sunt epuizata dar este ok... A fost cel mai greu... De acum avem doar analize pana vom fi ok sa scoatem cateterul...
Dupa ce am terminat tratamentul valorile au scazut mult datorita agresivitatii tratamentului. Azi pt ca hemoglobina era 7,3 ne-au adus la spital pentru transfuzie de sange... Sper din tot sufletul sa fie ultima... imi este foarte greu, am ajuns la capatul puterilor, ultima parte a tratamentului a fost foarte solicitanta pt mine... pupici. Iulia.
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Ana finished chemotherapy last Wednesday... I'm exhausted but it’s ok... It was the hardest part... The analysis so far we have only to remove the catheter will be ok...
After finishing the treatment, values decreased more due to aggressive treatment. Today because the hemoglobin was 7.3 they brought us to the hospital for a blood transfusion... I really hope it is the last one... It is very hard, I am the end of my strengths, the last part of the treatment was very demanding for me... Kisses. Iulia.
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